PALS Front Page

Dr.Tim Lynch has spent the past nine years fundraising, and the Neurological Institute is now a reality, with more clinics and soon, a drop in centre!

David Magennis has resigned as Chairman, and is now our President, an honorary title in recognition of the time and dedication to each of the PALS' wellbeing.

Our new Chairperson is Sinead O'Kane, a national school principal with two children, a husband and a hectic life!

Our next meeting will take place on November 16th in the Creggan Court Hotel (at the main roundabout just outside Athlone when coming from Dublin, in behind the garage and to the left). A 3pm start, with PDNS Patrick Browne, who works with neurologist Dr, Tim Counihan in Galway, and the topic will be "Non-Motor Aspects of PD including Sweating". Contact Sinead at 086 2869173 for more.

We are running a bus from Heuston Station leaving at 1pm for those members coming from Dublin - again phone Sinead to arrange!

Finally, Sinead has more details of our Christmas Party - 1pm at the Maples, Glasnevin, on December 14th - Costs etc. on request. A limited number of places.

Continued need for funding, but Institute opening September 19th

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Parkinson's Disease News from Medical News Today

Total visitors since January 2006: From July 2000 to January 2006 we had 75,000 visitors!

CoQ10, thought to help slow down the progression of Parkinson's is now on the list of acceptable drugs for claiming on the Long Term Illness Book. Note that you must obtain a Long Term Illness Book for this - if you have PD, you are entitled to this book. We have been told a medical card will not suffice. We have also been told that NO BRAND must be specified.

Symmetrel (amantadine), which was to be withdrawn as of May 30 2008, is now apparently not being withdrawn, thanks to some quick action and protests by PALS to the supplier, IMB, and to Dr. Lynch who also took action, and the Dublin Branch PAI who spoke to the HSE. However, there may be a change in the supplier.

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